Wednesday, July 23, 2014

Tissue Expansion and Options

Today I had a great appointment with my plastic surgeon, Dr Shale at McKay-Dee hospital. I had my tissue expanders filled again after almost 7 months! I couldn't have them filled while I was receiving chemo because my white blood count was too low ( and also because Dr Miranda said "no" repeatedly!). I will probably have just one more expansion to go- yay!! We also spent a lot of time discussing options for the actual reconstructive surgery. I have heard other women say that reconstructive surgery is actually worse than the mastectomy- and I didn't really believe them. I am less than impressed to report that Dr Shale told me the exact same thing today!! Basically I have a lot of information to consider before I make a decision. He told me I am "lucky" that I am not a "skinny Minnie " because it leaves us with more options!! Ummmm.....thank you??!!  "Lucky" is definitely not the first adjective that leaps to mind as I consider my fluffiness!! I really do feel lucky to have such a marvelous plastic surgeon though! I have been doing well since my last post. I have returned to work and plan to be full time in a few weeks!! I fatigue easily and am struggling with the neuropathy and numbness in my fingers so work is a bit challenging right now. I am frustrated that I am not 100%, but everyone has been very understanding. I am realizing how much we take for granted each day. It is absolutely staggering to me !! I am thankful for the reminder of what is truly important. I am ridiculously excited to be out of solitary confinement!! I can hardly contain myself when I get to run to the store!! I feel like a sunbeam that can finally do things " by mine own self !!" Thank  you one and all for your continuing love and support. We love you all and are so grateful for the many prayers that have come our way. My "blessings list" has grown and continues to grow each day! ~ Melissa

Friday, July 4, 2014

Happy News! 😃

Greetings dear ones! Today I had an appointment with Dr Miranda (oncologist) and thought I would update everyone. First of all, my lab results mostly look awesome! My liver enzymes were not even elevated a tiny bit- woohoo!! My blood counts look ok for the most part too. My vitamin D level was low so I am now taking an oral supplement. That level will be checked again in a few months to see if the pills are sufficient or we need to add an Iv infusion to protect my bones. This time my tumor marker number is considered a baseline. It will be checked in 3 months to see how it looks. We hope it remains the same or even drops. It's not so much the actual number as it is the trend of rising or falling that is significant. If the number rises it could indicate new growth of cancer cells- that's why we are keeping a close eye on it. In other news, I was scheduled to have a repeat brain MRI on Monday, but that had to be cancelled due to my tissue expanders. Apparently the magnets in my expanders might make me or the machine blow up. That minor detail will delay the MRI until the expanders are removed. The removal is a surgical procedure that will take place during reconstruction. I found out today that my port a cath can be removed at that time as well. Yay! Dr had initially told me that my port had to stay put for at least 6 months (preferably a year) but due to increased risk of blood clots we get to pull it earlier. The other exciting(?) thing that happened today is that Dr wrote my prescription for tamoxifen. This is a pill that blocks estrogen. This is because my tumor was shown to be estrogen receptor positive. Basically we are trying to create an environment that is hostile to cancer growth. I will be on this medication until the end of time- or maybe even longer! There are new guidelines that pre-menopausal women take it for 5 yrs, then if they are still pre-menopausal they take for 5 more years, then switch to a different med. wow that seems like forever! Hopefully I won't have too many side effects- my track record with medications is less than stellar! Overall, an excellent appointment today. I have such confidence in my dr and his marvelous care! What a lucky girl I am!! I am also now sporting lots of fuzzy whitish- gray  hair!! Less than desirable color, but I'm so excited that it's coming back so fast!! My sweet co-worker today told me that it's not old lady hair, it's angel hair. I LOVE that!! I am planning to work part time for the next couple of weeks. I am hoping to be able to be mostly full time by the first of August. Hopefully my body will cooperate! I am feeling so blessed, and hugely thankful for all of you! Love and hugs to all! ~ Melissa